What do children with cancer know about their medications?

Main Article Content

Tamara MacDonald
Derek MacDonald
Bruce Crooks
Cherie Collicott

Keywords

Abstract

Objectives: To explore the health literacy of children diagnosed with Acute Lymphoblastic Leukemia (ALL) through their knowledge of their medications.

Methods: Within the Basic Interpretive approach to qualitative research, semi-structured interviews were conducted with children from ages 6 to18 years (n=16) between May and September 2009 to determine their knowledge of medication properties, medication habits and medication teaching. REB approval was obtained.

Results: The younger children (mean age 7.5 years) correctly answered, on average, 51% of the questions on colour, 26% of the questions on name, 25% of the questions on frequency, and 8% of the questions on the purposes of their medications. The older children (mean age 16 years) scored at least 35% higher for each characteristic. All of the younger children reported that physicians consistently directed medication education to parents only, and that the younger children were rarely present during these sessions. 13 of the 16 children stated that they want to learn more about and be more involved in education sessions addressing their medications.

Conclusion: Children with ALL at the IWK Health Centre do not have a good knowledge of their medications, however most children expressed that they want to know more about their medications.

 

Keywords: Health Literacy. Health Knowledge, Attitudes, Practice. Neoplasms. Child. Adolescent. Canada.

Abstract 1554 | PDF Downloads 776

References

1. Bandura A. Social learning theory. Englewood Cliffs (NJ): Prentice Hall, 1976.

2. Slavin LA, O’Malley JE, Koocher GP, Goster DJ. Communication of the cancer diagnosis to pediatric patients: impact on long-term adjustment. Am J Psych. 1982;139:179-83.

3.Piaget J. The moral judgment of the child. New York: Harcourt, Brace & World; 1932.

4.Institute of Medicine. Health Literacy: A prescription to End Confusion. Washington, DC: National Academies Press; 2004.

5.Hironaka LK, Paasche-Orlow MK. The implications of health literacy on patient-provider communication. Arch Dis Child. 2008;93:428-432.

6.Wolf MS, Wilson EAH, Rapp DN, et al. Literacy and learning in health care. Pediatrics. 2009;124(5 suppl):S275-S281.

7.Borzekowski DLG. Considering children and health literacy: a theoretical approach. Pediatrics. 2009;124(5 suppl):S282-S288.
8.Abrams MA, Klass P, Dreyer BP. Health Literacy and Children: Introduction. Pediatrics. 2009;124(suppl 3):S262-S264.

9.DeWalt DA, Hink A. Health Literacy and Child Health Outcomes: A Systematic Review of the Literature. Pediatrics. 2009;124(suppl 3):S265-S274.

10.Tates K, Meeuwesen L, Elbers E, Bensing J. ‘I’ve come for his throat’: roles and identities in doctor-parent-child communication. Child Care Health Dev. 2002;28(1):109-116.

11. Howells RJ, Davies HA, Silverman JD, Archer JC, Mellon AF. Assessment of doctors’ consultation skills in the paediatric setting: the Paediatric Consultation Assessment Tool. Arch Dis Child. 2010;95(5):323-329.

12.Waitzkin H. Information giving in medical care. J Health Soc Behav. 1985;26(2):81-101.

13. Shapiro J. Family reactions and coping strategies in response to the physically ill or handicapped child, a review. Soc Sci Med. 1983;17(15):913-931.

14. Gould H, Toghill PJ. Communication in medicine how should we talk about adult leukaemia to adult patients and their families? BMJ. 1981;282:210-212.

15. Wassmer E, Minnaar G, Abdel Aal N, Atkinson M, Gupta E, Yuen S, Rylance G. How do paediatricians communicate with children and parents? Acta Paediatr. 2004;93:1501-1506.

16. Pantell RH, Stewart TJ, Dias JK, Wells P, Ross AW. Physician Communication with Children and Parents. Pediatrics. 1982;70(3):396-402.

17. Merriam S. Qualitative Research in Practice: Examples for Discussion and Analysis. San Francisco: Jossey-Bass; 2002.

18. Strauss A, Corbin J. Basics of Qualitative Research: Grounded Theory Procedures and Techniques. Newbury Park, CA: Sage Publications; 1990.

19. Glaser BG, Strauss AL. The Discovery of Grounded Theory: Strategies for Qualitative Research. New York: Aldine De Gruyter; 1967.

Most read articles by the same author(s)

1 2 3 4 5 6 7 8 9 10 > >>